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Cornea and External Disease

Financial burden of Sjögren’s syndrome may lead to lack of adherence

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A recent anonymous self-administered survey of individuals with Sjögren’s syndrome-related dry eye disease (SS-DED) found the cost of therapy and forgetting to administer drops were the most common reasons for lack of adherence. Approximately 83% of respondents said they would ration drops to reduce the cost of therapy.

In this Canadian-based survey, only 3% of individuals had private insurance for non-prescription agents for DED treatment.

Other interesting findings from the survey include:
-Nearly all (80%) were worried about reduced quality of life because of DED
-More than half reported fear of blindness
-A quarter said they wouldn’t tell their eye care provider about non-adherence

Reference
Michaelov E, McKenna C, Ibrahim P, et al. Sjögren’s Syndrome Associated Dry Eye: Impact on Daily Living and Adherence to Therapy. J Clin Med. 2022;11(10):2809. doi: 10.3390/jcm11102809. PMID: 35628934; PMCID: PMC9147102.

 

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