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Inherited Retinal Disease

Independent living, senses remain areas of concern for patients with IRDs

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Independent living, senses, and relationships are amongst the areas of quality of life (QoL) most affected by inherited retinal diseases (IRDs), according to a study.

In this cross-sectional observational study, health utility values of 70 adult patients with an IRD were calculated from the Assessment of Quality of Life 8-Dimension (AQoL-8D). The average health-related utility for patients with IRD was significantly lower than population norms (0.58 vs 0.80), with all 8 domain scores of the AQoL-8D being significantly lower in patients with IRD compared to population norms.

Reference
Schofield D, Kraindler J, Tan O, et al. Patient-Reported Health-Related Quality of Life in Individuals with Inherited Retinal Diseases. Ophthalmol Sci. 2021;2(1):100106. doi: 10.1016/j.xops.2021.100106. PMID: 36246188; PMCID: PMC9560564.

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