Independent living, senses remain areas of concern for patients with IRDs

Independent living, senses, and relationships are amongst the areas of quality of life (QoL) most affected by inherited retinal diseases (IRDs), according to a study.

In this cross-sectional observational study, health utility values of 70 adult patients with an IRD were calculated from the Assessment of Quality of Life 8-Dimension (AQoL-8D). The average health-related utility for patients with IRD was significantly lower than population norms (0.58 vs 0.80), with all 8 domain scores of the AQoL-8D being significantly lower in patients with IRD compared to population norms.

Reference
Schofield D, Kraindler J, Tan O, et al. Patient-Reported Health-Related Quality of Life in Individuals with Inherited Retinal Diseases. Ophthalmol Sci. 2021;2(1):100106. doi: 10.1016/j.xops.2021.100106. PMID: 36246188; PMCID: PMC9560564.