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Inherited Retinal Disease

Foundation Fighting Blindness announces updates to program that offers free genetic testing for patients with IRD

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The Foundation Fighting Blindness announced its partnership with PreventionGenetics, a part of Exact Sciences, as its new genetic laboratory partner for the My Retina Tracker Genetic Testing Program; InformedDNA remains a genetic counseling partner for the program.

The program seeks to enhance research on inherited retinal diseases (IRDs) and address barriers to genetic testing and counseling for patients with IRDs by offering free testing for patients with IRD who meet certain eligibility criteria. More than 20,000 patients have received no-cost genetic testing as part of the program.

Recent changes to the program, originally launched in 2017, include transitioning the laboratory partner to PreventionGenetics, simplifying ordering procedures, and offering a more targeted gene panel for IRDs.

“We are excited to partner with PreventionGenetics to further advance the My Retina Tracker Genetic Testing Program,” said Todd Durham, PhD, senior vice president, clinical and outcomes research at the Foundation Fighting Blindness, in a press release. “This collaboration underscores our commitment to improving patient access to high-quality genetic testing, a critical component in accelerating the development of therapies for inherited retinal diseases.”

Reference

Foundation Fighting Blindness partners with PreventionGenetics and InformedDNA to advance My Retina Tracker® Genetic Testing Program. PRNewswire. May 15, 2024. Accessed May 17, 2024. https://www.prnewswire.com/news-releases/foundation-fighting-blindness-partners-with-preventiongenetics-and-informeddna-to-advance-my-retina-tracker-genetic-testing-program-302145368.html

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